National Energy Action talk Wednesday 4th December

NEA logo

All members and carers welcome.

Come and get advice and hot tips on keeping warm in your homes and decreasing your energy bills this winter. Plus a bit of help on climate change!

 

NEA logo

NEA work across England, Wales and Northern Ireland, and with their sister charity Energy Action Scotland, to ensure that everyone can afford to live in a warm, dry home.  In partnership with central and local government, fuel utilities, housing providers, consumer groups and voluntary organisations, they undertake a range of activities to address the causes and treat the symptoms of fuel poverty.

All members welcome, please do pop your name on the list at reception so that we have an idea of how many people may be attending.

CBD Oil Talk on Thursday 16 January at 11.45am

CBD oil seminar with John Wood

Thursday 16th January 11.45am

Where? In the café area at the Sussex MS Centre

Could CBD Oil give you relief? John will cover what CBD oil is, how it works and how it may benefit you.

We want to offer a space for our members to learn a little bit more about how CBD oil may be able to help with pain management, where we can encourage an open discussion about the potential benefits of using CBD oil.

John

John is a Personal Trainer and takes the oil himself to relieve his anxiety.

CBD helps him when nothing else works and has made his life more manageable. He loves to teach others how to improve their health and gives seminars locally.

All welcome, please do pop your name on the list at reception so that we have an idea of how many people may be attending.

Bladder and Bowel Challenges – An introduction. Thursday 28 November

Bladder and Bowel Challenges – an Introduction to Effective Therapies with Siobhan Freeman

Thursday 28th November at 11.00am

FOUR OUT OF TEN PATIENTS ARE NEVER ASKED…

Walking difficulties, vision problems and fatigue are well-known symptoms in patients with MS.

Bladder and bowel dysfunction are less know – or at least less discussed and addressed.

Bladder and bowel dysfunction often come together. The impact this can have on quality of life for people with MS is huge and can result in both anxiety, depression and social isolation.

Still, many find it difficult to talk about these issues or feel too embarrassed to mention it to a doctor or nurse.  Due to the stigma surrounding these conditions they would rather choose to cope with their problems than try and address them.

As a matter of fact, four out of ten MS patients have never been asked about bladder and bowel problems during contact with healthcare providers.

Let’s remove the stigma and start talking about bladder and bowel dysfunction and the solutions that are now available to help to improve patient’s wellbeing and quality of life.

My name is Siobhan Freeman and I work for Wellspect manufacturers of Lofric catheters and Navina bowel management systems.

My role is to develop awareness of therapies that can make a real difference in patients’ lives.

If you are intending to come to this talk please let us know so we get an idea of numbers: members only.

Lions come to the rescue!

Lion members with Sussex MS Members

We had two vital pieces of equipment break at the same time, our hoist AND our tilt table – back in August!

Lions groups from Adur East, Brighton and Lewes clubbed together and generously funded the purchase of these two items. Without the hoist many our members with MS would not be able to take oxygen or have therapies that help them manage their symptoms we need to be able to transfer them from their wheelchairs into a smaller wheelchair or onto a massage plinth. The tilt table is an amazing piece of equipment which allows our most severely disabled members to be brought to vertical, realigning their internal organs and using muscles they otherwise wouldn’t be able to use. Some of our members are completely unable to stand alone so this gives them a real opportunity to experience this when in their physiotherapy sessions with a practitioner.

Lion members with Sussex MS Members

The funding landscape is shifting and it is becoming more difficult to gain funds from trusts and grant bodies with many other competing causes out there so to get an instant response to an emergency appeal like this was so amazing for us!

Adur East Lions President, Brian Teggart, commented that “The MS Centre provides a much-needed service to the people of our area and more widely in Sussex and we are delighted to be able to support them not only with one-off donations such as this but with a regular annual donation”.

To find out more about the Lions visit https://lionsclubs.org/en