Posts by Anthony
DMD Ocrevus Approved
In our autumn newsletter 2018 we wrote of how the NHS had reversed its previous decision and now recommends Ocrelizumab (drug name Ocrevus) for the treatment of relapsing remitting MS.
Disappointingly however, at the same time, NICE announced that Ocrevus was still too expensive for people with Primary Progressive MS (PPMS).
The good news is that the NHS struck a deal with Roche (the pharmaceutical company) and patients with PPMS are now able to access the drug. It is estimated that 10,000-15,000 people have Primary progressive MS (PPMS) in the UK, of whom around 2,700 people could be eligible for treatment with Ocrevus.
If you have Primary Progressive MS and you have started to take Ocrevus please feedback to us. We welcome all feedback about drugs and you can contribute by going on our Drugs directory as someone that can talk with other members about a drug you have experience of.
To find out more information about Ocrevus head to: www.mstrust.org.uk/a-z/ocrevus-ocrelizumab
Sponsored Bike Ride
On Sunday 8th June we held our annual 20 mile sponsored bike ride, from Shoreham Airport to Slinfold Village hall.
This year we had an amazing turn out with teams from Southwick Co-op, Rossetts Vans Worthing and many more old and new faces. We were up against a wild wind and frequent rain showers… However all of our wonderful cyclists put on a cheerful face and made it to the end for lunch at Slinfold!
The day could not have been such a success without our incredible troop of volunteers, that took on roles marshalling points along the route with refreshments, our support cyclists, and our village hall volunteers feeding our hungry teams as they arrived at Slinfold.
It was a great day out for everyone; a huge thanks to all that participated and volunteered. Once all the funds are collected we hope to reach over £4000 for this event!